Thursday, December 29, 2005
I talked to daddy this morning and momma is doing very good. Contrary to her belief, you do in fact need more than the nutrients found in Diet Coke. She is no longer dehydrated and is feeling much better. They met with the radiation oncologist yesterday who is hopefully going to begin treatments on Tuesday. As she was explaining some of the side effects and risks, momma got a emotional and little upset but the doctor (I think her name was Charlotte Ross) was able to calm her down. Of course, I don't want momma upset, but that is definitely a sign that she is doing better, as last week she would not have comprehended what she was being told in order to even be upset! Going back to Little Rock was definitely a great thing and I am so glad Daddy did it. He said that she is starting to cut up and be silly--wonderful news to hear!!
Wednesday, December 28, 2005
Wednesday 12/28 Update
They started the first dose of chemo last night. Momma will be taking Temodar in a pill form while they are doing the radiation. Of course it is too early to tell anything regarding any side effects she might have from the medicine but last night went well. She is eating--very picky of course, but eating none the less. They are at Baptist in Little Rock and will continue to stay in LR after she is discharged from the hospital but continuing treatment. The plan is for them to stay at the Extended Stay America that is near the hospital. Thanks for all your thoughts, prayers and best wishes.
Tuesday, December 27, 2005
Tuesday 12/27 Update
Because momma was so weak and confused, daddy took her back to Little Rock and got in with an oncologist there today. They admitted her today and she will likely be hospitalized for a week or so. While there, they can get going on the radiation and chemotherapy. Keep her in your prayers.
Monday, December 26, 2005
Monday 12/26 Update
What a weekend! First of all, thanks for everyone's thoughts and prayers during this holiday time and thank you to all who brought food for us. Anyone that knows much of momma and her cooking will know that this was by far the best holiday meal we have had. It certainly beats the time that momma had the nursing home where Grandma Ruth lived serve us four extra trays for Thanksgiving one year or the time that we had Pizza Hut on Christmas. So, thanks to you all.
Well, as far as momma goes, it wasn't as strong of a weekend as we had all hoped for. She was pretty disoriented and had some tummy troubles for the majority of the weekend. A lot of the time she stayed in bed during the day but was restless and agitated for the most of the nights. We think all of this has to do with the heavy meds she is taking for pain. While we did meet the oncologist last week, we weren't really thrilled with him at the time but after receiving calls since the visit from his office, and momma's sincere dislike of him, we are looking for another doctor. The holidays have made it difficult to get much done in the way of doctor visits and appointments so it has been a little trying to get in to someone. Amazingly, when you call and say, "my mother has a brain tumor" no one has said "what time would you like to come in tomorrow?". We have really not lost any precious time at this point because the radiation cannot begin for two to four weeks after surgery anyway, and the surgery was two weeks ago Friday. But, we do need to get it going early this week. Fingers crossed.
Momma has also allowed a few visitors, which is great news. She has seen a couple of friends and her brother and nephew. She does tire easy and is uncomfortable fairly quickly since she doesn't understand what is everyone is saying, but I think seeing people that care has to be good for her. Thanks again for everything and especially your prayers.
Well, as far as momma goes, it wasn't as strong of a weekend as we had all hoped for. She was pretty disoriented and had some tummy troubles for the majority of the weekend. A lot of the time she stayed in bed during the day but was restless and agitated for the most of the nights. We think all of this has to do with the heavy meds she is taking for pain. While we did meet the oncologist last week, we weren't really thrilled with him at the time but after receiving calls since the visit from his office, and momma's sincere dislike of him, we are looking for another doctor. The holidays have made it difficult to get much done in the way of doctor visits and appointments so it has been a little trying to get in to someone. Amazingly, when you call and say, "my mother has a brain tumor" no one has said "what time would you like to come in tomorrow?". We have really not lost any precious time at this point because the radiation cannot begin for two to four weeks after surgery anyway, and the surgery was two weeks ago Friday. But, we do need to get it going early this week. Fingers crossed.
Momma has also allowed a few visitors, which is great news. She has seen a couple of friends and her brother and nephew. She does tire easy and is uncomfortable fairly quickly since she doesn't understand what is everyone is saying, but I think seeing people that care has to be good for her. Thanks again for everything and especially your prayers.
Thursday, December 22, 2005
Meet the Oncologist...
Well, we met him! We are going to start radiation as soon as possible and a low dose chemotheraphy that momma can take in a pill version. Today was not a good day for her as she had a pretty bad headache and is pretty confused. Keep us in your thoughts as we hope and pray for a better weekend. Hope you all have a wonderful Christmas!!
Wednesday, December 21, 2005
Wednesday 12/21 Update
Momma didn't sleep so well last night so today she's frustrated and a little confused. Please make sure to think of her and Daddy today, hopefully this afternoon will be better. David from Hair Jazz is coming over this morning to fix her hair so we are hoping that will help with her getting out and about. We are all very eager to see the doctor tomorrow and know what we are looking at with the treatments--and very eager to get those started.
Tuesday, December 20, 2005
Tuesday 12/20 Update
Daddy just called and they are on their way home. Staples are removed and she can do whatever she wants now--if it were me, I would probably have to stop at a hotel just to take a shower!!! We have an appointment with an oncologist in Memphis on Thursday at the Midsouth Cancer Center. Dr. Burson (the neurosurgeon) says that he's the best. I am very excited to meet with someone to get this process of fixing momma going! I looked at their website and in his bio it says that he's a huge Grizzlies fan so I have to run now to get a small Grizzlies gift to take with us. I am totally okay with bribery...
Getting restless!!!
According to daddy last night, momma is getting very restless! I am sure it is a combination of anxiety over today's appointment (I know I am nervous about them getting all of those staples out for her) and cabin fever. I will update as soon as I hear from daddy after today's appointment. Here's to getting on with the treatment of this thing!
Sunday, December 18, 2005
Forgot to Mention...
Any other time, I would be a horrible daughter for announcing this, but momma has gained 9 pounds back!!
Sunday 12/18 Update
When I arrived Friday night, Daddy had gotten a call that his mother (who is in a nursing home in Lonoke, AR) had taken ill and might have pneumonia. Momma does very well as long as she remains calm but of course this news upset her so she was a little distracted all night. Daddy had planned on going to Lonoke Saturday anyway to tell grandma about momma but when he saw her he only said that she had had an operation. Turns out that grandma has a really bad cold and should be recovering soon. While daddy was gone Saturday, we spent all morning getting momma fixed up. By the time daddy returned, we had freshly cleaned hair and make-up on. We put a scarf on her head and we joked about this was going to be her Cher impersonation period. We got some stuff done around the house and cleaned out some closets and had a really good day. I did manage to get her out of the house to ride with me to get my car washed. I had hoped that after we were in the car, we could stop by someone's house or something but that didn't happen. At least we did get out of the house, so that was a step in the right direction...
Friday, December 16, 2005
Eating and Sleeping!
Momma is doing much better from the surgery now. I talked to daddy this morning and she is eating and sleeping much better, both of which can only help her continue to feel better. We go back to the doctor on Tuesday for a post-op checkup and hopefully we'll find out more about the oncologist the neurosurgeon recommends for us. I will be in Wynne this weekend so I probably won't write more until I return. Thanks again for everything and every day she's doing a little better--lots to be thankful for!
Wednesday, December 14, 2005
Wednesday 12/14 Update
I talked to momma this morning and she sounded good. Dad has made arrangements to be with her at home for a while and she is glad for that. With Neall practicing in Wynne, he is able to be there a lot which has been great. He and Daddy are both so good with helping her in so many ways---we are so very lucky. Another good day to be thankful for.
Tuesday, December 13, 2005
Tuesday 12/13 Update
I saw momma tonight and she is looking so much better! She ate more tonight than she has in a while. Her words are coming to her a lot better than they were earlier in the week and even before the surgery. Today was a good day--great news.
Monday, December 12, 2005
Such a Speedy Recoverer!!!
Neall just called and momma is coming home tonight! She is so excited! Yippee! Everyone's prayers are working! Thank you!
Phones...
Daddy has misplaced his phone during all this so Neall will be taking Mom's cell phone to him to use at the hospital. Neall and I both have our phones all the time as well.
Monday 12/12 Update
I talked to Daddy about 11 this morning and they had seen the speech therapist and physical therapist. I am sure the physical therapist was quite surprised when momma probably jumped right out of bed. For someone following a major surgery, she has been pretty mobile! The speech therapist said that while the brain cells won't regrow, the brain can use different paths to utilize different areas of itself. Daddy sounded better than he has in a few days and is very positive. Whoo-hoo!!!
Sunday, December 11, 2005
Here we go....
There are so many people thinking of my momma right now, there is no way to call or get in touch with all of them on a daily basis. This is a way to let folks know what is going on with momma and her situation. There have been a lot of rumors going around (by no means where these mean spirited, but rather so many people love her so much and they are so concerned and everyone is talking and trying to get some consolation) and I want to make sure that everyone knows what is going on and where we are in this strange, strange adventure we are now taking.
Let me first give you some history on where this all began... for the past month or so, momma has seemed a little odd. Anyone that knows her knows that she is quite a character so erratic behavior or comments is never cause for concern! She is always causing a scene and the absolute center of attention. But the weeks before Thanksgiving, she seemed to be more forgetful and unable to find the words she was looking for. We all were a little concerned. On Thanskgiving, she told us that she had been taking Zoloft for a week and a half--she had gone to the doctor thinking the odd things going on were because of anxiety. Friday she and Daddy went to the doctor who took her off the Zoloft and told her it would be out of her system in a week but she continued to get worse. The appointment was made with her neurologist but it was two weeks off. My brother called daily and got her into the doctor on Monday, December 5th. The doctor said it was stress as well, we thought a nervous breakdown perhaps, but he did a MRI just in case and was going to call daddy with the results in a day or two. Before they could get out of Little Rock, they called to come back to the hospital, they had found swelling which might be caused by a tumor. Neall was with them at the hospital, came back to Wynne, and the two of us made it back to the hospital on Tuesday. The nuerogsurgeon came to speak with us, told us that the tumor was not able to be removed, but they could go in and try to get as much as possible with it--as much as they could do safely without causing more damage. He said that there was significant risk involved with this but without it, there would only be three months left with momma. Of course, there was no question. The surgery was Friday.
The tumor is in the left temporal lobe which explains why her words and memory have been so lost. Momma does not seem to be in physcial pain but is very frustrated that she can't always find the word she is looking for. Although, she has said some pretty humorous stuff! One of my personal favorites was when she told me that Neall and I had been such a blessing to her and that she knew we weren't perfect. She said, "you know, you with all the boys and all"; I had no idea my mother thought I was so promiscuous! But as long as I was still a blessing, I suppose that is okay!
The surgery on Friday went well. We were in the surgery waiting room and the doctor came out saying that he wanted the immediate family only in a seperate room, and I became terrified. Every drop of blood in my body fled to my knees and ankles. Even after he said she was alive and okay, I still felt as if I might faint and I was sitting down. He said they got all they could and that she was moving her hands and fingers--so no paralysis. He had no idea what a mover she was going to be! She was moved into a room Saturday afternoon and on Sunday, she got of bed and walked to the bathroom with me and put on fresh pajamas of her own and brushed her teeth. Less than 48 hours after a cranial surgery and she is walking around with no IVs and no catheter! What a champ!
Our plan at this point is to do radiation and chemotherapy. The brain has to heal for two weeks after surgery before radiation begins so we are looking at December 26th for the first day. My mother has been a woman of great strength her entire life. Her father died of lung cancer and she was there to care for him during this time; her mother had a tumor on her spine and suffered for twenty years and my mother was her sole caregiver and support for the entire time. It is her biggest fear to be a burden on anyone. She is great at helping others but pretty shabby at taking help. Momma would much rather leave this world without anyone having to take care of her than be here for a minute longer causing anyone pain or discomfort. She is quite possibly the most humble, loving and giving person that has ever been. And no one has ever been loved as much as she is.
I hope to update this as often as possible regarding her condition. Please know that momma loves everyone in her life dearly but at this point, she is distraught and terrified at "losing her mind". She has requested that no one visit or call her. Daddy is her rock and foundation at this time. It is our sincere hope and prayer that she comes to the point that she will want to see and visit with friends as we know that this is the best for her, but until she is okay with that we cannot and will not force her.
Daddy has been an absolute pillar of strength. Momma teases how alike we are--something that fifteen years ago would have appalled me! But now, that might be the greatest compliment there ever could be. I have the utmost respect for this man but this respect has been grown to a unimaginable point during this time. He is so incredibly good to momma and is so calm and understanding with her. She is completely enamoured by him and is only concerned with his well being and quite honestly, only cares about his opinion. If we told her the sky was blue she would ask him to confirm it was true. She continues to tell us all that she loves him so much and what a wonderful man he is, which no one could ever doubt.
Please keep her in your prayers. We all need it.
Let me first give you some history on where this all began... for the past month or so, momma has seemed a little odd. Anyone that knows her knows that she is quite a character so erratic behavior or comments is never cause for concern! She is always causing a scene and the absolute center of attention. But the weeks before Thanksgiving, she seemed to be more forgetful and unable to find the words she was looking for. We all were a little concerned. On Thanskgiving, she told us that she had been taking Zoloft for a week and a half--she had gone to the doctor thinking the odd things going on were because of anxiety. Friday she and Daddy went to the doctor who took her off the Zoloft and told her it would be out of her system in a week but she continued to get worse. The appointment was made with her neurologist but it was two weeks off. My brother called daily and got her into the doctor on Monday, December 5th. The doctor said it was stress as well, we thought a nervous breakdown perhaps, but he did a MRI just in case and was going to call daddy with the results in a day or two. Before they could get out of Little Rock, they called to come back to the hospital, they had found swelling which might be caused by a tumor. Neall was with them at the hospital, came back to Wynne, and the two of us made it back to the hospital on Tuesday. The nuerogsurgeon came to speak with us, told us that the tumor was not able to be removed, but they could go in and try to get as much as possible with it--as much as they could do safely without causing more damage. He said that there was significant risk involved with this but without it, there would only be three months left with momma. Of course, there was no question. The surgery was Friday.
The tumor is in the left temporal lobe which explains why her words and memory have been so lost. Momma does not seem to be in physcial pain but is very frustrated that she can't always find the word she is looking for. Although, she has said some pretty humorous stuff! One of my personal favorites was when she told me that Neall and I had been such a blessing to her and that she knew we weren't perfect. She said, "you know, you with all the boys and all"; I had no idea my mother thought I was so promiscuous! But as long as I was still a blessing, I suppose that is okay!
The surgery on Friday went well. We were in the surgery waiting room and the doctor came out saying that he wanted the immediate family only in a seperate room, and I became terrified. Every drop of blood in my body fled to my knees and ankles. Even after he said she was alive and okay, I still felt as if I might faint and I was sitting down. He said they got all they could and that she was moving her hands and fingers--so no paralysis. He had no idea what a mover she was going to be! She was moved into a room Saturday afternoon and on Sunday, she got of bed and walked to the bathroom with me and put on fresh pajamas of her own and brushed her teeth. Less than 48 hours after a cranial surgery and she is walking around with no IVs and no catheter! What a champ!
Our plan at this point is to do radiation and chemotherapy. The brain has to heal for two weeks after surgery before radiation begins so we are looking at December 26th for the first day. My mother has been a woman of great strength her entire life. Her father died of lung cancer and she was there to care for him during this time; her mother had a tumor on her spine and suffered for twenty years and my mother was her sole caregiver and support for the entire time. It is her biggest fear to be a burden on anyone. She is great at helping others but pretty shabby at taking help. Momma would much rather leave this world without anyone having to take care of her than be here for a minute longer causing anyone pain or discomfort. She is quite possibly the most humble, loving and giving person that has ever been. And no one has ever been loved as much as she is.
I hope to update this as often as possible regarding her condition. Please know that momma loves everyone in her life dearly but at this point, she is distraught and terrified at "losing her mind". She has requested that no one visit or call her. Daddy is her rock and foundation at this time. It is our sincere hope and prayer that she comes to the point that she will want to see and visit with friends as we know that this is the best for her, but until she is okay with that we cannot and will not force her.
Daddy has been an absolute pillar of strength. Momma teases how alike we are--something that fifteen years ago would have appalled me! But now, that might be the greatest compliment there ever could be. I have the utmost respect for this man but this respect has been grown to a unimaginable point during this time. He is so incredibly good to momma and is so calm and understanding with her. She is completely enamoured by him and is only concerned with his well being and quite honestly, only cares about his opinion. If we told her the sky was blue she would ask him to confirm it was true. She continues to tell us all that she loves him so much and what a wonderful man he is, which no one could ever doubt.
Please keep her in your prayers. We all need it.